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Down syndrome

The Day I Won the Lottery

    Happy World Down Syndrome Day from Ace! Today I have the honor of sharing what I wrote for Aleteia's For Her magazine about what World Down Syndrome Day means to me, almost one year after our little guy's birth.   If I could write . . . [to] my pregnant self, the woman at the kitchen ...

#Aceface & World Down Syndrome Day

“Every child, every person needs to know that they are a source of joy; every child, every person, needs to be celebrated. Only when all of our weaknesses are accepted as part of our humanity can our negative, broken self-images be transformed.” -Jean Vanier, Becoming Human Each year on March 21 the world ...

Dear Parents of a Child with Special Needs (Revised and at TCW today!)

[caption id="attachment_10014" align="aligncenter" width="1024"] Monica Ayers Photography[/caption] Several months ago I posted a letter here of some things I had learned in my then six or so months of being the mom of a child with special needs. Today that piece (revised and with some additional thoughts) is over at ...

Why ‘Receive’ Should Have Been My Word in 2015

Cultivate was my word for 2015, a year that was probably the most challenging of my life. I didn’t write about that word, Cultivate, all that much. Not because I didn’t feel inspired by the power of its meaning, but because I didn’t really have the energy to think about what I was cultivating. In all honesty, last ...

On Belonging, and the Buddy Walk

When I got the prenatal diagnosis for Ace's Down syndrome I felt a strong sense of separation. I was no longer a typical mother raising typical kids. I was different. My husband was different. Our family was somehow other. This wasn't something I worried about for long. From the beginning our friends and our ...

To the new parents of a child with special needs

Dear new parents of a child with special needs, I saw your Facebook post. Congratulations! The way I see it you had two deliveries yesterday: One was bringing your baby into this world. The other was telling the Internet that your baby is different. Both require deep courage. You delivered graciously and with ...

When the promises are in the distance, waiting to be welcomed home

  We’re way behind schedule when we walk in the door and I call out a litany of frantic mother phrases, “Shoes off! Hands washed! August-do-your-reading-for-ten-minutes!” while I lay Ace on the quilt in the living room and toss a couple of toys his way before starting dinner. Brooks is not happy about ...